New Hope For TTTS

  When I had my girls the decision for a c-section was done immediately. But now I see that the delivery of twins has changed. In Brazil. Laser ablation of placental vessels for treatment of severe twin-twin transfusion syndrome. This procedure is rare but it has been proven successful.  Delivery of twins is a very nerve racking experience. Knowing that your children are in jeopardy is the worst. Luckily we live in a world that doesn't stop searching and researching  for ways to lessen any worries for all that comes in any families ways. I am thankful that even though in 1996 my daughters were born by c-section, I am happy for those new mothers with multiples.

Karina and Ariana Gomez 2 weeks old

 

 

 

 

My Beginnings

Ariana, Marleni and Karina  ages 2 and 5

I am the mother of three daughters. It is very hard to describe only one experience due to the fact that these experiences are different but alike in nature. My first daughter Marleni marked the beginning of a new life for me. The second birth was the birth of my twins. Knowing that I was having twins left me numb and terrified.

Ariana, Marleni and Karina ages 16 and 19

During my first ultrasound (which I demanded because this pregnancy just didn't feel right.Their father brought a tape and asked to record it to show Marleni and the family. The Technician said " You have a lot to show alright, here is one head and another you are having twins" The pregnancy was difficult. I developed gestational diabetes, my blood pressure went up, I suffered premature contractions. One visit the doctor said we needed to remove the pump and deliver the babies early because one of the babies wasn't growing.(Ariana)  I had an emergency C-Section. I saw my babies for a brief second and they were whisked away to neo-natal. I was informed that the girls suffered Acute Twin Transfusion Syndrome.Twin to twin transfusion syndrome (TTTS) is a disease of the placenta (or afterbirth) that affects identical twin pregnancies .Acute TTTS describes those cases that occur suddenly, whenever there is a major difference in the blood pressures between the twins. This may occur in labor at term, or during the last third of pregnancy whenever one twin becomes gravely ill or even passes away as a result of the abnormalities in their shared placenta. Acute TTTS twins may have a better chance to survive based on their gestational age. I was informed that Ariana's development will be slower than Karina's. Ari did have problems not major compared to Kari but I kept myself informed and worked with other parents in the same situation as me.

A NOTE OF THANKS!

I would like to extend my appreciation to Maria Mino. Thank you Maria for taking the time to read some of my posts and providing feedback that I used to continue working through these 8 weeks. At times I always felt overwhelmed and at times wondered if the assignments where done correctly. Thank you for giving me the pat on the back I needed.!

I would also like to Thank Cedar Tyler.  The moments I needed words of encouragement I knew I was going to count on her. Thank you Cedar for making the times I questioned many of my discussions. I felt grateful for you input and opinions and beliefs. It has been a wonderful experience being able to participate in this course with your help.

I also enjoyed reading Tunyia Williams discussions and her blogs. Tunyia's responses also helped me reflect my position in the early childhood field. Her responses towards my blogs gave me encouragement. Thank you for providing the positive side of learning. Much Success and it has been a pleasure learning from you.

I look forward to thanking all of you in person!

My Inspiration

  

 I would like to introduce to you Sebastian Cook our newest member of our family.  Sebastian has been diagnosed with Emanuel Syndrome.Emanuel syndrome is a chromosomal disorder that disrupts normal development and affects many parts of the body. Children with Emanuel syndrome have weak muscle tone (hypotonia) and fail to gain weight and grow at the expected rate (failure to thrive). Their development is significantly delayed, and most affected individuals have severe to profound intellectual disabilities.The diagnosis of Emanuel syndrome is challenging due its rarity, lack of familial history and because the clinical features of Emanuel syndrome can also be seen in other syndromes. There are 200 reported cases and 500 worldwide. Sebastian's disability has driven me to work with families in educating others with this disability. Families suffer financially and emotionally in coping with their children development. So far Seby has had 2 open heart surgeries, he has one kidney, and has had ear plugs procedures done twice He's a been through a lot. You could never tell with that smile could you?

The Principles towards my future

The Code of Ethics of the Division for Early Childhood(DEC) of the Council for Exceptional Children
II. PROFESSIONAL DEVELOPMENT AND PREPARATION
To be able to continue in the world of early childhood practices it is necessary to constantly be up to date with any research and practices. The importance of early childhood one must thoroughly educated and be prepared to demonstrate and share that knowledge with others. These are the basic tools to help one implement all resources available to help open doors to other resources for others to have the opportunity for children with special needs to succeed.

IV. ETHICAL AND EVIDENCE BASED PRACTICES
 In order to provide quality care any observations must have back up to validate appropriate practices for the children and their families. Any suggestions or findings must be thourly reviewed to be able to promote trust and a sense of security so that the families feel safe and will continue to acceptance guidance towards the betterment of their children.

 NAEYC Code of Ethical Conduct and Statement of Commitment
III.Ethical Responsibilities to Colleagues
It is very imortant in any position collegues shoudl be abale to work and respond in any projects as a team. Teamwork is one of the essential tools to achieve success . Many of the views in early childhood requires to listen and interpret resources that will come from any angle. Early childhood educators should demonstrate their professionalism and create a positive working environment to achieve their goal.
 To continue the goals  that I set for myself to in early childhood, I must look back and review that this mission that I undertook requires a lot a responsibilities. I must always remember that I took this journey to enhance my passion to work with children and their families. To be able to succeed I must remember there's a rule of thumb to give respect is to gain it. I must also remember that  my main purpose is to create a peaceful and trusting setting so that I can provide the quality services for  the families that I will encounter.

Helpful Links

http://earlychildhoodeducationresources.com/



http://www.earlychildhoodlinks.com/teachers/resourcesitesearlychildhood.htm


 http://www.littlegiraffes.com/

This resource handbook is designed as a reliable compilation of curriculum ideas that can be used by early childhood educators everywhere -- student teachers, paraprofessionals, in-service teachers, college instructors, and especially parents. It provides Early Childhood Educators with the means to plan for and develop a curriculum in which children individually and in groups can learn through a wide range of experiences.

This second edition offers further insight into Selma Wassermann's notion of organizing instruction known as "Play-Debrief-Replay" - a means of structuring curriculum experiences to promote children's active learning in co-operative groups and to foster independent thinking. The book also provides a theoretical framework for implementing teaching for thinking in primary classrooms. By updating references and adding a chapter on moral dilemmas, including information that is consonant with constructivist ideologies, Wassermann continues to promote ways of teaching that stimulate children's appreciation for social and ethical issues. Here approach is holistic; it not only honours the play of children, but also the work of teachers.

PRAB Early Learning Center Gives Children a Boost

Engaging Families in Early Childhood

http://www.rtinetwork.org/essential/family/engagingfamilies

Preschool should be child's play

http://mg.co.za/article/2012-09-28-preschool-should-be-childs-play/